Tuesday, March 24, 2009
these are my 2 favorite blogs and this week is a tough one. I am particularly struck with the topic they are discussing in the midst of crisis; God's sovereignty; I found this link,
http://www.gotquestions.org/free-will-sovereign.html, and thought it was helpful. I am still confused about believing in a sovereign God who has given us free will and where prayer falls into that. I believe with all of my heart that prayer can and does change things. I know baby audrey is rejoicing in heaven right now, and I also believe that baby Stellan can be healed here on earth, but as to the answers of why one mother has to grieve the loss of her baby and one get's to hold her's in her arms, I am at a loss to even comprehend why that happens. Wish I could articulate better what I am feeling, just know that I love God and believe he has a plan for all of us and that prayer is a wonderful thing.
Friday, March 20, 2009
Tuesday, March 17, 2009
This morning I woke up to jackson screaming for me and crying. He was 3 steps out of his bedroom, bent over in pain. He screamed, "I can't walk!" I picked him up and tried to figure out what was going on. Mommy diagnosis, severe dehydration and muscle cramps. Insert picky eater. Jackson refused popsickles, refused, water, refused coke, refused ice cream, refused ice chips. I could not get ANYTHING into this child. Doing the math in my head, I figured it had been 26 hours or so since he had peed and knew we had a problem.
Now with any other kid, you can reason with them and explain to them the importance of needing to drink and eat. Not with jackson. I called my husband and had him try to explain to my amazing and adorable but speech impaired 5 year old what a trip to the hospital would entail for IV hydration. With gramma to the rescue to pick up coke and jackson's ONLY juice he will drink (roaring waters capris sun strawberry kiwi)I knew I had my work cut out for me.
Fast forward 4 hours to right now and the drama has subsided. Jackson drank 4oz. water, 4oz. coke, and 2 of his favorite juice pouches over 2 hours and has now gone potty. His leg cramps are improving and he is now comfy on the couch watching a thomas movie. The thought of lunch time is overwhelming to me, but we will take one baby step at a time and be grateful for the wonderful miracle that is jackson.
Monday, March 16, 2009
I did not secretly enjoy the fact that jackson was sick this weekend because that would just be mean. And it certainly wasn't because all he wanted me to do was "rock me" all day yesterday. It did not make me feel like a great mom to love and hold and comfort my ailing child and wish for days when he was a baby and needed me every second. That would be crazy now that he is 5 and gaining independence.
I did not thoroughly enjoy working out 6 days this week. That would just be nuts to actually enjoy sweating and looking forward to going to the gym. I would never do that.
I did not totally ignore all housework that needed to be done this weekend so I could take care of my sick child. That would be irresponsible and make monday really hard to catch up on all the housework. Nope, not me!
And I am certainly NOT sitting at this computer blogging and catching up on email while my little guys are watching a movie and I am starring at a pile of laundry. Cause that would be just CRAZY!!!
I did not seriously consider changing my hair style and adding bangs after my 5 year old asked,"mommy, what's that on your forehead??" what are you talking about jackson?, I asked. "those train tracks!" hhmmm, that's one to think about.
Sunday, March 15, 2009
As Jackson's comfort increased, I moved forward a little. We turned off the compter game and focused just on playing. I got out his favorite morning sticks and some small tootsie rolls (which he will eat both of) and he got really excited. I showed him that taking apart the keebler cookies, there was chocolate inside. Then asked him to open a tootsie roll. He said, look, they are the same!! He actively helped me take apart several cookies and play with them. We then squished his tootsie rolls in between his graham cracker sticks and made our own sandwiches. He responded very well to this and ate 2 tootsie rolls in the process!!
Friday, March 13, 2009
It's a wonderful and small blog world and things are looking up!!!
Wednesday, March 11, 2009
Monday, March 9, 2009
I wanted you to know about this publication I’m a part of called Serious.Life Magazine. They just published the March issue today, and I am in their Featured Blog Directory. It’s a very high quality magazine… you’ll really like it.
The magazine includes a lot of great content from bloggers you’ll appreciate, as well as great features, photos and other content. The magazine is owned and published by a family who have seven kids, three adopted and one who has Leukemia (www.riggsfamilyblog.com). The magazine gives away a bunch of ads to charities and ministries. Besides great articles on interesting people, there is a lot about family, adoption, personal finance, spiritual life, humor… all sorts of “life” topics.
Again, the subscription is FREE, and I know you’ll enjoy the magazine, so take a minute to check it out and sign up to get future issues. http://www.seriouslifemagazine.com/
I also have the riggs family blog button on my sidebar, the pray for abby square. This is an amazing family dealing with life's curve balls and they are doing it with dignity and grace and are such an inspiration to me. I hope you all take a minute to read about abby and her fight with leukemia and share in praying for the whole family.
Sunday, March 8, 2009
repeat X6 and you have an average day.
Saturday, March 7, 2009
Jackson was diagnosed with a moderate, expressive language delay as a 2 1/2 year old. We feared he may be demonstrating some autistic traits so we took him to the pediatrician and then got referred for evaluation with a speech and language pathologist. His testing could not be totally scored as a result of his fascination and almost obsession with the page numbers of the testing book versus what was actually on the page. We immediately sought a therapist who could help jackson. He has had 2 and 3 day a week speech therapy since then and has demonstrated remarkable progress with that therapy. Jackson is remarkable in his love of academics and his reading ability. He was spelling his name as an 18 month old and sounding out words by 2 1/2. He is reading on a kindergarten/first grade level and just turned 5 last week. All this to be said, if you ask him what he did at school or where he wants to have his birthday, he gets a confused look on his face, scratches his head, and fumbles with what words would form an appropriate answer. It does add a dose of humor to our day when he says things like, "mom, I have sick all over my tummies." He tries so hard to express what he is thinking and feeling and sometimes it just gets all jumbled up. Even now, he will introduce himself to the kids in his pre-k class like they have never seen him before when they have been in school together all year. Every morning he bounces into class with a huge smile and exclaims, "Hi! I'm jackson!" to which the kids giggle and call him silly.
All this to be said, Jackson is our unique gift from God and we face challenges just like any other family does. We are blessed that he is generally healthy (minus the egg allergy and seasonal and pet allergies). He is a happy well adjusted kid. Well, until it is time to eat that is.
After an anaphylactic allergic reaction to scrambled eggs at 11 months of age, we started restricting and then reintroducing foods for fear of more allergies. Because of this, we (john and I) feel we may have helped our son to be a "picky" eater. He generally excepted most foods that toddlers and small children do. He always loved chicken nuggets, fruit, crackers, puffs, etc. We always thought he would grow out of the general "picky eating". Then in December jackson just decided he didn't want to eat. Foods that he had always eaten and loved, he rejected. As his food choices dwindled, his anxiety at meal times increased and we observed near panic attack behavior when he was asked to come to the table. For January and February jackson chose only Wendy's chicken nuggets, strawberry nutra grain-bars, and cinnamon morning sticks. We could use coke to bribe him occasionally to eat, but that was about it. Imagine my anxiety and stress over having a child who won't eat and can't express why he is so scared to think about new foods.
I found an amazing book by a wonderful author, and I feel like I finally have some answers and a resource to try to get help for jackson. Cheri Fraker CCC-SLP, CLC and her team have written a book called Food Chaining: The Proven 6-step plan to stop picky eating, solve feeding problems, and expand your child's diet. I read it from cover to cover in one night and LOVE what she has to say. We are taking it day by day with a plan from this book and trying to get jackson on a path to healthy, happy eating!
I would love any insight, advice, or just prayer about all of this and look forward to any other resources anyone may have.
(just on a side note though, we have tried EVERYTHING under the sun to get jackson to eat. Yes, we have offered rewards, tried charts, offered the same thing until he ate it(which he never did), let him go hungry to "break him", and even gently placed food INTO his mouth in attempts to prove that if he just tasted it he would like it.) All of which did not work and some of which was very detrimental to his progress.
The food chaining technique seems to make the most sense as I feel it is a processing issue coinciding with his expressive delays. But it is going painfully slow and the baby steps he is making aren't spilling over into accepting new foods yet.
All of this to be said, I am going to keep track of accepted foods, new foods tried, food ratings, so I can be the best mom to my son.
So if you have stopped by and are bored to tears, sorry. Hopefully there will be enough logan humor to outweigh the food therapy!
Thanks to my family and friends who love and support me! I couldn't do it without you.
Sunday, March 1, 2009
Please pray for Abby, and when you think of her, pray for all the hurting children in this world. Make that any hurting soul. Lord, may you reveal yourself to us and make your purpose known to all who endure suffering in this life. May you be peace to the troubled and comfort to the brokenhearted.
abby's button is now on my sidebar if you want to read her story and pray for the family.